Spring Break 2012

Even though we couldn't afford to go away some where for spring break, I still wanted to do a few fun things with Makenna. On Sunday, March 25 we went to the zoo. It was a beautiful day...not too hot, not too sunny, the perfect weather for Brody. On Monday, Brody had a follow up with the heart doctor. We found out that the hole in heart had closed and also the artery that wasn't carrying enough blood to his lunghs was fully functional now. YIPPIE! From there we went to Incredible Daves. After about an hour Makenna came up and said, "Mom, can we go home now, I'm just worned out."  :-) On Tuesday, we just stayed home and did a little housework and packed for our Cincy trip. On Wednesday we came up a day early for Brody's dermatology/ortho /ent appointments and took Makenna to the Newport Aquarium. We had a good time. That place is so big and so neat. Big Mike the alligator was back and he is GIGANTIC! From there we went onto the hotel a little early so Makenna could swim some before it was too late. Thursday we head to Cincy Children's Hospital for what we thought were going to be routine checkups. We had to get Brody measured for new braces: 2 for his right leg, one during the day and one at night. The one at night will keep his leg straight. He is also getting one for his left foot because it points almost straight down, like a ballerina stance. His derm appoinment went well. Dr. Lucky is always so happy with what she sees when she sees him. We don't have to go back to EB Clinic for 6 months!!! Too bad ortho, ENT, and the surgeon (read on) want us back in 3 months. POO! Makenna had to get her blood drawn for the genetics testing. Although she teared up just a little, she didn't cry at all. Brave girl...The ENT doctor decided to do a swallow study on Brody the next morning to see why he coughs when he takes a bottle. Everyone expected to see strictures in his esophogus from the EB. But instead, he has been aspirating into his lungs when he eats and has been doing this for quite some time. That drew an immediate admittance into the hospital for Brody to have a scope of his throat done and also a feeding tube put in. Both doctors that were to be included in the surgery were out of town so we had to wait until late Wednesday afternoon before the surgery took place. So, here I sit at the hospital, a week later, so beyond ready to go home. I haven't seen Makenna since last Friday, I haven't slept in my own bed since last Tuesday, I've missed this whole week of work (without pay I might add EEEEK!), and I'm just over being here.

I didn't take all that many pictures of our spring break adventures, but here are a few.